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Last updated April 2026

Top Cystic Fibrosis Influencers to Follow [2026]

List rating: 4.9
11

Meet the inspiring voices within the Cystic Fibrosis community on Instagram. These advocates raise crucial awareness, share the realities of daily treatments, and build a supportive network for patients and families.

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Jess Martin | Early Years Expert | Conscious Parenting
#1

Jess Martin | Early Years Expert | Conscious Parenting

@thelittledreameruk
Followers:361.2KLocation:N/AType:Macro influencerCategories:Not specifiedGender:Not specified

Bio:ย ๐ŸŒท Qualified Norland Nanny. Early years professional & intentional parent enthusiast: ๐Ÿ‘ง๐Ÿผ๐Ÿ‘ถ๐Ÿป Daughter with Cystic Fibrosis / Son PGT IVF.

Jess Martin | Early Years Expert | Conscious Parenting is a macro influencer from N/A with around 361.2K followers.

Ben Mudge - Online Coach
#2

Ben Mudge - Online Coach

@benmudge_
Followers:119.4KLocation:CanadaType:Macro influencerCategories:Not specifiedGender:Not specified

Bio:ย The Compassionate Coach ๐Ÿ“š13 years of coaching ๐ŸคŒ๐ŸปHere to make health & fitness easier

Ben Mudge - Online Coach is a macro influencer from Canada with around 119.4K followers.

Mary Frey
#3

Mary Frey

@freyliving
Followers:78KLocation:United States (USA)Type:Micro influencerCategories:Not specifiedGender:Not specified

Bio:ย Sharing the ups and downs of life with Cystic Fibrosis with my husband @peterfreylife and son(Elijah) along with Ollie&Harry on Youtube TheFreyLife!

Mary Frey is a micro influencer from United States (USA) with around 78K followers.

Kate Eveling
#4

Kate Eveling

@thevftos
Followers:58.1KLocation:N/AType:Micro influencerCategories:Not specifiedGender:Not specified

Bio:ย ๐Ÿ•ฏ๏ธ (idk what Iโ€™m doing) โœจmental health, unaesthetic life ๐ŸŽฌ new YouTube vlog every friday

Kate Eveling is a micro influencer from N/A with around 58.1K followers.

Julia Rae
#5

Julia Rae

@itsjuliarae
Followers:51.1KLocation:N/AType:Micro influencerCategories:Not specifiedGender:Not specified

Bio:ย act, sing, write, golf, dance, repeat. I run my own nonprofit @singingatthetopofmylungs ๐Ÿฉต & I host @foreloveshow ๐Ÿ‘€โ›ณ๏ธ @playingthroughmovie

Julia Rae is a micro influencer from N/A with around 51.1K followers.

Ryan Mo
#6

Ryan Mo

@ryan_mo15
Followers:39.4KLocation:N/AType:Micro influencerCategories:Not specifiedGender:Not specified

Bio:ย Servant of Christ โœž Cystic Fibrosis Advocate Faith&Fitness ๐Ÿ“ฉ: [email protected]

Ryan Mo is a micro influencer from N/A with around 39.4K followers.

๐™‚๐™๐™‰๐™‰๐˜ผ๐™ ๐™€๐™Ž๐™„๐˜ผ๐™Ž๐™Š๐™‰
#7

๐™‚๐™๐™‰๐™‰๐˜ผ๐™ ๐™€๐™Ž๐™„๐˜ผ๐™Ž๐™Š๐™‰

@esiason17g
Followers:13.2KLocation:N/AType:Micro influencerCategories:Not specifiedGender:Not specified

Bio:ย Saved by science ๐Ÿงฌ Patient advocate ๐Ÿซ Dad to Blinky, Blitzen, Kaz & Mieke ๐Ÿถ๐Ÿถ๐Ÿง‘๐Ÿผโ€๐Ÿฆฑ๐Ÿ‘ถ๐Ÿป BC โžก๏ธ Dartmouth ๐Ÿฆ…๐ŸŒฒ #cysticfibrosis

๐™‚๐™๐™‰๐™‰๐˜ผ๐™ ๐™€๐™Ž๐™„๐˜ผ๐™Ž๐™Š๐™‰ is a micro influencer from N/A with around 13.2K followers.

Mandie Rudd-Sherman
#8

Mandie Rudd-Sherman

@shermanmandie
Followers:12KLocation:N/AType:Micro influencerCategories:Not specifiedGender:Not specified

Bio:ย Thriving while fighting Cystic Fibrosis ๐Ÿซ Miracle Mama x 3 Navigating Grief and Life After Loss ๐Ÿ‘ผ ๐ŸŽคSpeaking Engagements : Dominica - Feb 2026

Mandie Rudd-Sherman is a micro influencer from N/A with around 12K followers.

Salty Cysters
#9

Salty Cysters

@saltycysters
Followers:10.5KLocation:N/AType:Micro influencerCategories:Not specifiedGender:Not specified

Bio:ย โ€ขLea & Tiff โ€ขCystic Fibrosis Fighters๐ŸŒน โ€ขPodcast Hosts๐ŸŽง @breathe_in_pod โ€ขBicoastal Cysters w/ a passion to help the CF & chronic disease community๐Ÿ’œ๐Ÿฆ‹

Salty Cysters is a micro influencer from N/A with around 10.5K followers.

jamesrich
#10

jamesrich

@jamesrich23
Followers:8.2KLocation:N/AType:Nano influencerCategories:Not specifiedGender:Not specified

Bio:ย โ€ข Cystic Fibrosis Warrior/Advocate โ€ข Creator/Owner of @insight__fitness โ€ข Master trainer/ ๐ŸฅŠ coach โ€ข Host of @jamesscorner

jamesrich is a nano influencer from N/A with around 8.2K followers.

๐“๐ก๐จ๐ฆ๐š๐ฌ ๐‰๐จ๐ก๐ง-๐๐š๐ฎ๐ฅ ๐‡๐ž๐ง๐ซ๐ฒ
#11

๐“๐ก๐จ๐ฆ๐š๐ฌ ๐‰๐จ๐ก๐ง-๐๐š๐ฎ๐ฅ ๐‡๐ž๐ง๐ซ๐ฒ

@thomasjhenry87
Followers:5.9KLocation:N/AType:Nano influencerCategories:Not specifiedGender:Not specified

Bio:ย โ€ข@cf_ireland Ambassador โ€ขAdvocate โ€ข๐–ฃ๐—ˆ๐—Ž๐–ป๐—…๐–พ ๐–ซ๐—Ž๐—‡๐—€ ๐–ณ๐—‹๐–บ๐—‡๐—Œ๐—‰๐—…๐–บ๐—‡๐—/Cystic Fibrosis โ€ขT1Diabetic/Tourettes โ€ข@hairartist_tom_pelo_doll Lilo

๐“๐ก๐จ๐ฆ๐š๐ฌ ๐‰๐จ๐ก๐ง-๐๐š๐ฎ๐ฅ ๐‡๐ž๐ง๐ซ๐ฒ is a nano influencer from N/A with around 5.9K followers.

Chelsea Stahl โ€ข Yogi โ€ข CF fighter โ€ข Mother
#12

Chelsea Stahl โ€ข Yogi โ€ข CF fighter โ€ข Mother

@salty_yogi
Followers:5.6KLocation:N/AType:Nano influencerCategories:Not specifiedGender:Not specified

Bio:ย ๐Ÿซ Sharing the journey of life and motherhood living with cystic fibrosis ๐Ÿง˜๐Ÿฝโ€โ™€๏ธ Yoga studio owner & teacher in the US Virgin Islands

Chelsea Stahl โ€ข Yogi โ€ข CF fighter โ€ข Mother is a nano influencer from N/A with around 5.6K followers.

Lauren Black
#13

Lauren Black

@laurenslifesavers
Followers:1.3KLocation:N/AType:Nano influencerCategories:Not specifiedGender:Not specified

Bio:ย I'm an adult living with cystic fibrosis! Welcome to this side of my life :)

Lauren Black is a nano influencer from N/A with around 1.3K followers.

Ella Balasa
#14
Followers:1.2KLocation:N/AType:Nano influencerCategories:Not specifiedGender:Not specified

Bio:ย ๐Ÿ‘ฉโ€๐Ÿ’ปPatient Advocate and Engagement Consultant ๐Ÿ”—Healthcare Collaborator ๐Ÿ—ฃSpeaker ๐Ÿ“Writer ๐Ÿ’œcystic fibrosis Personal: @thisgirlella Find my work ๐Ÿ‘‡

Ella Balasa is a nano influencer from N/A with around 1.2K followers.

Jax
#15
Followers:1.1KLocation:N/AType:Nano influencerCategories:Not specifiedGender:Not specified

Bio:ย ๐Ÿ‘ถ๐Ÿป Mum to George, 5 ๐Ÿ‘ถ๐Ÿป Ollie, 1 with cystic fibrosis ๐Ÿงฉ Founder of @playshedpuzzles ๐Ÿ“ท Lover of photography, travel & coffee ๐Ÿ“ Manchester, UK

Jax is a nano influencer from N/A with around 1.1K followers.

Ari & Joe
#16
Followers:904Location:N/AType:Nano influencerCategories:Not specifiedGender:Not specified

Bio:ย Identical twin sisters with Cystic Fibrosis. ๐Ÿƒโ€โ™€๏ธ๐Ÿƒโ€โ™€๏ธ

Ari & Joe is a nano influencer from N/A with around 904 followers.

Osiris Daniels
#17

Osiris Daniels

@a_cystic_life
Followers:844Location:N/AType:Nano influencerCategories:Not specifiedGender:Not specified

Bio:ย I have Cystic Fibrosis. I'm on Trikafta which has been life changing. Every end is a new beginning.

Osiris Daniels is a nano influencer from N/A with around 844 followers.

Manu
#18
Followers:763Location:N/AType:Nano influencerCategories:Not specifiedGender:Not specified

Bio:ย ๐ŸŒฌCystic Fibrosis fighter ๐ŸพHooman mum of Ayla @ayla_the_chocolatelab ๐Ÿคธ๐Ÿปโ€โ™€๏ธTraining and playing lover #fitcozza โœจEnjoy lifeโœจ

Manu is a nano influencer from N/A with around 763 followers.

battling2breathe
#19

battling2breathe

@battling2breathe
Followers:0Location:N/AType:Nano influencerCategories:Not specifiedGender:Not specified

battling2breathe is a nano influencer from N/A with around 0 followers.

sophiegraceholmes
#20

sophiegraceholmes

@sophiegraceholmes
Followers:0Location:N/AType:Nano influencerCategories:Not specifiedGender:Not specified

sophiegraceholmes is a nano influencer from N/A with around 0 followers.

fight2breathe
#21

fight2breathe

@fight2breathe
Followers:0Location:N/AType:Nano influencerCategories:Not specifiedGender:Not specified

fight2breathe is a nano influencer from N/A with around 0 followers.

See all influencers in this list

Found a few influencers you like? Unlock the complete list and let Socialveins turn it into a campaign-ready shortlist with clear pricing, projected views and next steps.

No random scraping or cold DMs โ€“ we help you use the full list safely and effectively for your brand.

Who should use this list

This list is made for brands that want to work with credible influencers instead of random profiles found on Instagram/ YouTube. It is especially useful for D2C brands, local businesses, e-commerce stores and marketing teams planning launches or performance campaigns that want to reach relevant audiences(city, region or niche).

How to use this list for your campaign

  1. Shortlist 5โ€“15 influencers whose content and audience match your brand.
  2. Share your objective, budget and timelines with the Socialveins team.
  3. We refine the shortlist, align deliverables and share projected views and expected ROI for each influencer.
  4. Our team then manages outreach, negotiations, scripting, approvals, tracking and reporting for you.

How to choose the right influencer from this list

  • Match their content niche and tone with your brand positioning.
  • Check if their audience aligns with your target city, age group and interests.
  • Look beyond follower count โ€“ consistent views and engagement matter more than just big numbers.
  • If you are unsure, share your options with Socialveins and we will recommend a mix based on data and past campaign learnings.

Why run your campaign through Socialveins

Instead of chasing influencers individually, brands offload campaigns to Socialveins to get higher reliability and better results.

  • Curated, verified influencer shortlists instead of random outreach.
  • Transparent discussions on pricing, deliverables and timelines.
  • End-to-end execution โ€“ from shortlisting and negotiation to scripts, publishing and post-campaign reporting.
  • Protection for both brand and influencer with clear expectations and minimal coordination overhead for your team.
You stay focused on brand and strategy while our team handles the heavy lifting to maximise campaign performance.

Strategic Campaign Concepts

Move beyond basic mentions. We've analyzed the creators in this list to develop tailored campaign frameworks that drive actual brand outcomes and audience resonance.

Request Custom Strategy โ†’
Gain weight on the CF diet easily.

High Calorie CF Snacks

500-calorie shakes for weight gain. Users search 'YourBrand CF Shake' for the recipe.

Target Audience

CF Patients
Stop hating your daily vest therapy.

Vest Therapy Hack

How to make airway clearance less boring (gaming/reading). Tell viewers to search 'YourBrand Vest Time' for ideas.

Target Audience

Teens with CF
Pack the perfect hospital bag for a tune-up.

Hospital Stay Packing List

Comfort items for a 2-week admission. Direct users to search 'YourBrand CF Hospital' to pack smart.

Target Audience

CF Parents
Need a more specific campaign plan?
Our creative team can build a custom roadmap for your specific brand goals.
Get Free Consultation

Frequently asked questions

Everything you need to know before shortlisting influencers from this list.

How does Socialveins curate and verify influencers for this list?

Our team shortlists influencers using real data such as follower trends, engagement consistency, content quality, and brand safety indicators. We also recheck influencer activity to ensure that the influencers shown here are active, authentic, and relevant for campaigns. This gives brands a dependable starting point without guesswork.

Are these influencers trustworthy for brand collaborations?

Yes. Every influencer featured in this list has been evaluated for authenticity, past content behaviour, audience relevance, and overall brand-fit. While we do not provide direct contact details publicly, Socialveins ensures transparent coordination so brands can execute campaigns confidently and professionally.

Can Socialveins help me connect with these influencers for a campaign?

Absolutely. Instead of sharing raw contact details, Socialveins facilitates professional outreach, negotiates deliverables, aligns expectations, and ensures both the brand and influencer stay protected throughout the collaboration. This results in smoother communication and better outcomes.

What is the benefit of running campaigns through Socialveins instead of doing it manually?

Brands that offload campaigns to Socialveins typically achieve better results because we pre-validate influencers, negotiate fair and transparent pricing, manage scripts and approvals, track deliverables, and provide clear performance reporting. This end-to-end execution dramatically improves outcomes compared to manual coordination.

Do you guarantee transparency during influencer selection and pricing?

Yes. Socialveins is built on transparency. We openly discuss influencer suitability, deliverables, expected performance, and pricing before any campaign starts. There are no hidden charges, inflated quotes, or unexplained markups at any stage.

How accurate is the data shown for these influencers?

Metrics on this page are refreshed periodically using platform signals and our internal monitoring systems. Before any collaboration begins, Socialveins also shares the latest performance snapshot for each selected influencer so brands make decisions based on updated and reliable numbers.

Can I run a multi-influencer or city-wide campaign using this list?

Yes. Many brands use groups of influencers from this list for city-level promotions, store launches, D2C growth, and performance campaigns. Socialveins can prepare a high-impact campaign plan that combines several influencers, formats, and deliverables for maximum reach.

What happens after I share my campaign brief with Socialveins?

Once you share your objective, budget, and timeline, our team prepares a refined shortlist, aligns deliverables with influencers, handles outreach and negotiations, manages scripts and deadlines, tracks live performance, and shares a clear post-campaign report. You get a hands-off experience with higher reliability and better outcomes.

Are small brands or first-time advertisers suitable for influencer campaigns?

Yes. Influencer marketing works well even for young or first-time brands when managed correctly. Socialveins guides you on budgeting, selecting influencers, choosing formats, and measuring results so campaigns remain cost-effective and outcome-driven.

If I want to work with influencers not shown in this list, can Socialveins help?

Definitely. This page showcases a curated selection, but our database includes many more influencers across categories, niches, and locations. If you need additional options, Socialveins can create a personalised list based on your brand goals and target audience.